Thank you all for praying...one prayer has been answered!! Kari's counts are up from 360 to 610!! We get to go to church tonight. We are so excited!
Tuesday night Kari's PICC line started leaking so we had to make a quick trip to Clinic yesterday morning to get that taken care of. Before we left for Lexington, Home Health came to draw Kari's labs. She was all upset about that and even more upset to find out we had to get "Pluto" cleaned and re-dressed. It's painful for Kari because the tape that is over her PICC line is stuck on there so tight that it probably feels like it's pulling a layer of skin off! Her appetite is hilarious still. When we were finished with Clinic, she ate a piece of pizza on the way to Cracker Barrel then gravy and biscuits, chicken tenders, and mac and cheese at Cracker Barrel. Already this morning she has eaten 3 pieces of french toast, bacon and 2 packs of oatmeal. It's really funny! On another note, Malachi is adjusting well I think. He seems to be the only one sleeping in our household at this point. LOL! Kari is up all night hungry and I'm up all night feeding her. Malachi has a hard time remembering that Kari has a "boo boo" on her arm and he has to be careful but he's learning. Last night was probably the worst night we've had. When I gave Kari a bath last night after her already emotional day, she saw me getting hair off my hands to put in the trash. She asked if that was her hair falling out...??? My heart broke and apparently so did hers because she burst into tears again and said "Mommy, I don't want my hair to fall out!" We sat and cried together and then when she got out of the bathtub, we cried some more. I sat down with her and explained that Jesus is with us and even though we hate this sickness, He's going to make something awesome out of it! I'm not sure she was convinced. But my prayer for Kari is that Jesus would be real to her and she could understand that He is here with her to comfort and help her. Just being honest...I don't understand this trial and I won't try to. But I HATE it. Anyone who has walked this road before us, you know where we're at right now. Kari doesn't understand and, really, there is no good way to help an almost-4-year-old understand why they're sick, losing hair, going to the hospital so much, taking so much medicine....it's a nightmare. The next few weeks will be rough and we desire your prayers. God is faithful and I know He will be here to comfort and get us through. This wouldn't have come our way had it not passed through His hand first. Because of that, He will surely get glory out of it.
I started this blog to document the story of my kids as they grow up. However...July 8, 2011 changed that slightly when Kari was diagnosed with Acute Lymphoblastic Leukemia (ALL) . We invite you to share our journey as we walk through it with the Lord's help!